Thread: Three Words

Originally Posted by NYSEguy1970

The fight doesn't go to well.

In light of such news, any words of encouragement or solace I have to offer seem vain and inadequate. But know that you and your family have never strayed far from my thoughts since you started this thread. You and yours have my well wishes and sincere hope that you keep fighting, that you live long, and that you live well.

/salute

After following this thread for 11 pages I couldn't reply so easily due to the horrific news I heard. Nidor, there is always hope even in the worst of times when it feels as though you have no hope left. You have a wonderful family, friends, and an mmo community that cares for you. I know you can pull through this and all of us will be with you through it all.

One of my neighbors a year ago was diagnosed with this when treatment wasn't as good as it is today. He made it to the point where you are and even though all hope seemed as though it was gone there was still some that was hanging on. He made it through and today is living in Hawaii to live his life to the fullest.

Just start stacking up on some finesse starting tuesday and it will make it harder for this disease to process

This is what friends (I hope you know these 7000+ views are all people who consider themselves your friends, pixelated or not) are for, to help you be strong when you don't feel you can be. Hop on our shoulders man and let us ease your journey to recovery as much as we can.

You keep doing your spider thing and entangle this garbage until you can make it out.

You are the man.

So sorry to read this man. Don't know what else to say other than keep fighting and be as strong as you can for your family.

There is always hope, while the doctors say things might (or might not) seem probable everything is possible. May the goddess shine upon you.

-Clio

I have to say that the human brain is an amazing thing. It's ability to cope, process, adjust, and accept horrific news is nothing short of a miracle. Otherwise, I think one would just crumple into a ball and rock in a corner.

There is no doubt I will continue to do whatever I can to fight this. However, what I find interesting is that in a conversation this morning with my family we had a discussion about how we had read in another forum post about Zelboraf how that individual was doing well after 17 months on the drug. I was encouraged and said that was pretty good.

Months...it's a little chilling to think about measuring success for keeping your disease at bay for months, when you started thinking in terms of years when this all started, but that's my new normal.

Months may turn to years, one never knows, but when you think you have decades, then years, and now measure the progression of your life in months, it's very strange, and stranger still is how your mind can just accept the changes.

I'm still wrapping my head around the idea, but I surprised myself this morning to say the least at my acceptance of my predicament.

In fact, I think it may be harder for my family to swallow the 'new normal' than it is for me.

I hope in the months I am granted, some other breakthrough for my disease is discovered and I'll be able to switch back to attack plan Alpha looking for a curative solution, but every moment on this Earth is precious and whatever time I'm given I will value.

I so want to 'hug' you.....*don't tell my wife*

Nidor you and your family will be in my prayers. Theres only one man who can heal ya bruddah, and i prob will get flamed for this but im not ashamed to say his name , and thats JESUS. Im not gonna preach or anything to ya, dont even know if you believe in God or not, but you can be healed totally of this . Just saying stay strong .

Originally Posted by NYSEguy1970

I have to say that the human brain is an amazing thing. It's ability to cope, process, adjust, and accept horrific news is nothing short of a miracle. Otherwise, I think one would just crumple into a ball and rock in a corner.

There is no doubt I will continue to do whatever I can to fight this. However, what I find interesting is that in a conversation this morning with my family we had a discussion about how we had read in another forum post about Zelboraf how that individual was doing well after 17 months on the drug. I was encouraged and said that was pretty good.

Months...it's a little chilling to think about measuring success for keeping your disease at bay for months, when you started thinking in terms of years when this all started, but that's my new normal.

Months may turn to years, one never knows, but when you think you have decades, then years, and now measure the progression of your life in months, it's very strange, and stranger still is how your mind can just accept the changes.

I'm still wrapping my head around the idea, but I surprised myself this morning to say the least at my acceptance of my predicament.

In fact, I think it may be harder for my family to swallow the 'new normal' than it is for me.

I hope in the months I am granted, some other breakthrough for my disease is discovered and I'll be able to switch back to attack plan Alpha looking for a curative solution, but every moment on this Earth is precious and whatever time I'm given I will value.

You said it. Really, all any of us can do is live for NOW. Who knows what tomorrow may bring. I might get hit by a bus, or I might win the lottery (though buying a ticket might help in that regard). Just focus on TODAY being better than yesterday, and before you know it, it will be next week; then next month; then next year. One day follows the one before, and tomorrow never really comes.

I have followed your thread Nidor, and have been sending good wishes and positive thoughts to you and your family since I first read it. Can I just say that the strength and courage you have shown during this entire battle has been nothing short of inspirational. My thoughts continue to stay with you and your family and thank you for allowing us this insight into this fight you are waging against the most insidious of opponents, I know I have been touched by it more than I can say.

Originally Posted by Hurkules

Nidor you and your family will be in my prayers. Theres only one man who can heal ya bruddah, and i prob will get flamed for this but im not ashamed to say his name , and thats JESUS. Im not gonna preach or anything to ya, dont even know if you believe in God or not, but you can be healed totally of this . Just saying stay strong .

True that.

Hey Nidor, I completly missed this thread and had wondered where you've been. Your in my prayers mate, I hope to see my favorite spider around sometime.

How was BSG? I was considering giving it a shot.

Originally Posted by Mithrundirs

Hey Nidor, I completly missed this thread and had wondered where you've been. Your in my prayers mate, I hope to see my favorite spider around sometime.

How was BSG? I was considering giving it a shot.

Hard to say. Since I've been forced to a craptop while I've been away from home I was looking for some browser based game. I've not been able to play bsg on my desktop yet. It's very laggy but that's my machine. Seems "grindy" though. However if u r a fan of the show it's worth checking out.

Bringing the good vibes from Wargfola

(: My thoughts and prayers are with you

Nidor,

Thanks for sharing your condition with the community. You and I aren't all that different in terms of age and family and I can only say that reading your horrible turn this year has made me want to log off of LOTRO and play with my kids a little bit today. Life truly is precious and fleeting and sometimes we all need to be reminded of that!

Anyways, best of luck to you in your recovery. I hope things improve for you soon. You are my favorite creep and IMO one of the few who always seems to play the game the right way!

Cancer has to be the scariest of all maladies as it can literally hit anyone at any time often without any reason. I have long been donating to the Jimmy fund here in Boston since losing a friend to cancer and I highly recommend every one else here who cares about this issue to find a similar cancer charity to give to. Every little bit helps! One day they will make a breakthrough and it may just be you that benefits....

now I know why my cancer has been such a #####. It clearly shows the spread of my melanoma into my lungs and the odd tumors that have formed.....

this was my last xray:

Originally Posted by NYSEguy1970

now I know why my cancer has been such a #####. It clearly shows the spread of my melanoma into my lungs and the odd tumors that have formed.....

this was my last xray:

Damn Sauramon!!!!!

Glad to see your sense of Humor is still 100% Nidor. Keep Kicking Cancers A$$

Been a while, thought I'd check in and see how you're doing.

Originally Posted by Tiamo

Been a while, thought I'd check in and see how you're doing.

He's fighting cancer and the white-hand like a boss!

My cancer is 'on hold' for now. As I've said before, I've currently run out of 'curative' options, so I'm taking my Zelboraf to great effect for now.

I just don't know how long it's going to last. The Zelboraf eventually will stop being effective, but that could be in 5 months or a couple of years. No way to tell.

The meds make me ache all over, like a bad case of the flu...my joints and muscles are stiff and achy, but I can live with that....I have to live with that, cause I can't live without my meds and it's side effects.

In the meantime, I'm back home and have been enjoying being able to get back on LOTRO for the last few weeks. I've leveled my ####### to 44 now and even took him for a ride around the Ettens. Scary place if you are a freep I have to tell you.

A handprint..hehe. (I hope that was meant as a funny..cause I'd feel stupid if I just laughed about it..although it wouldn't be the first time I laughed inappropriately).

Originally Posted by MummyLord

A handprint..hehe. (I hope that was meant as a funny..cause I'd feel stupid if I just laughed about it..although it wouldn't be the first time I laughed inappropriately).

Mike, the cancer may be eroding my body, but not my sense of humor. it's all good friend!

Hey Everyone,

just wanted to update you all, since it's been a while.

When we left FL to come back home in October, my family thought we were bringing me home to be more comfortable during my last days. Getting through the holidays was in serious doubt and even making it to our neighborhood holiday light show was in doubt as well (which is this weekend btw). I was that sick.

as a recap:

In Sept I underwent an experimental treatment that didn't work and my disease was progressing very aggressively in spite of efforts to stop and reverse it. I had widespread disease in both lungs; 4 tumors several centimeters in size in my axilla and lungs; bone mets on my pelvis, ribs, and vertebrae; and generalized disease in my abdominal cavity. Luckily no specific organ in my abdomen had been invaded yet, but that was probably not far away. I had nearly a liter of fluid drained from my lungs due to the tumors and disease. When the docs saw that the treatments were not working and the disease was killing me and if something else wasn't done I'd be dead very shortly they put me on a new med called Zelboraf.

Once on Zelboraf, I started to feel better very quickly and while I didn't know what was going on inside of me, I at least felt better. Strength was returning to me and I felt more like my old self.

I just had a MRI and CT to see how well the meds are working. One thing about this med is it's not permanent. When it works it works for a while, but the cancer figures a way around it eventually.

This was what my doc told me after reading the scans:

no brain mets (no change from prior MRI)
2 of my large tumors are gone
2 lung tumors have shrunk to 5mm x 5mm and 8mm x 8mm in size. Doc feels this actually represents scar tissue or dead tumor.
generalized lung disease: fully resolved (medspeak for gone)
generalized abdominal disease: fully resolved
bone demonstrated a recalcification in the areas of my mets indicating the lesions are gone and the bone is healing

the disease has essentially been reset and put back to it's starting position with regard to it's attack on my body. I still have Melanoma, but at least i'm not at death's doorstep due to the disease at this time and there is minimal evidence of the disease in my body at this time. I can only hope that the meds keep my melanoma at the starting position for a very long time. Long enough for new treatments that offer a possible cure for my disease to become available. The drugs may work for 4 months, or 4 years...only time will tell. However during this holiday season, think of me and remind yourself that miracles do happen. Miracles of faith, science, medicine, does it really matter? A miracle is a miracle and we all should be thankful for any miracles and remember that they do happen.

HAPPY HOLIDAYS EVERYONE!

It's your good attitude that makes all the difference! I look back at two of my family that fought cancer. One, was very depressed and fatalistic, and only lasted a few months. My mother stayed very positive, beat it, and has been free for nearly a decade. Stay positive!

Well done!

Wow Nidor, I'm very happy for you and your family!

Nidor, thanks for the update. I hope you and your family have a wonderful holiday season.

Brilliant news, I actually have a tear in my eye.

Hopefully this is a sign of better things yet to come. Have a healthy and happy Christmas and holiday season. All my best to you and yours!

~Mojo

Best news I've had all week. Happy Holidays indeed.

Wow buddy, good to hear.
Will def keep you/your family in our prayers this Holiday Season.

Awesome news man, keep healing! So nice to read a positive thread

Happy you spread the better news to everyone here in the BW community. You have many people pulling for you and will continue to have my support until that final cure comes along. I follow all the journal articles you write and I thank you for continuing to share your version of "Mr. Toad's Wild Ride."

Keep webbing...keep kiting...keep fighting!

/salute to you and your family.

I have refrained from posting anything yet as I had just lost my father to an agressive melanoma when you were diagnosed, but I feel that I can post now and congradulate you on your progress.

I am happy that you are feeling better and will get to spend this extra time with your family in better health, as I know all too well from experience that the holidays can be an exceedingly rough time when faced with a situation like this.

Enjoy every moment you have with your family and friends, because in the end, there never seem to be enough moments.

Thanks for the update Nidor^TM I am really happy for you and your family that your cancer has been reset and that your feeling better.You show courage and strength that many of us just hope we could have in a time of crisis.Keep having a positive attitude and your great sense of humor anything can happen with medical science advances are being made each month.Try to live day by day enjoying life as we all should don't think to far ahead and about forces we cannot control.

As always my families priers are with you and I wish you and your family a wonderful holiday!

~Obi

You're an amazing fighter Nidor. Your strength, courage and perseverance is inspiring. Happy Holidays and I hope there are many more of them in the future for you. ~Cheers

glad to hear that your doing better.

I know that there are adults, parents, and kids who have posted in and follow this thread.

Please take 5 minutes to watch this, and make sure you have a box of tissues. It's quite relevant to my current fight.

http://www.thatvideosite.com/video/dear_16yearold_me

Oh, and on a lighter note...the holiday show must go on. I will post Nidor's holiday light extravaganza for 2011 shortly.

Posted to my facebook.

~~~~~~~Positive Vibes~~~~~~~~

The cure is out there.

Hey Nidor, I am really sorry to hear this. I quit years back, but was checking out the forums today. This was quite a shock to see. I always respected you as one of BW's best PVMPers, and one with a consistently positive attitude. The grace and humor with which you have been dealing with this cancer speaks volumes about what an upbeat person you are. I'm glad to see you're still scuttling around Middle Earth same as always, putting fear into the hearts of the freeps I still remember our champ v spider duel way back when. Good times I'm rooting for you.

I just read your good news at caringbridge (I've forgotten my login for now) and I wanted to say I am so happy to read it. Praying for you daily. Mike

Hey Nidor! I had no idea you were going through all this! I just randomly popped in here, and I'm glad I did!

You're in my prayers, buddy.